All tips given the month of June will be donated to the Kramer family. Molly, the daughter of Kevin and Jessica was born on Nov. 27, 2017 and spent her first 19 days in the hospital battling persistent pulmonary hypertension. After being released from the hospital she lived a seemingly normal life. However, after a swallow food study at 3 months of age, it was discovered that she was silently aspirating her food. Molly was then admitted back into the hospital to place an NG tube for her feedings. She was then discharged, and the assumption was that she simply needed to master her feeds in order to live a typical developing life. However, at age 7 months, Molly began making twitching movements with her eyes and crunching motions. Molly was again admitted to Dayton Children’s where, after MRI’S and EEG’S, she was diagnosed with Dandy Walker Syndrome, Infantile Spasms and Cortical Vision Impairment. Dandy Walker Syndrome is a disorder where the brain is underdeveloped, and Infantile Spasms is a rare form of epilepsy found in children. At age three and a half, Molly has made great strides with her diagnosis. Her seizures are stable and decreasing, and with the assistance of Help Me Grow, she is making great strides with her physical movements. Molly is nonverbal and may not have the ability to walk or crawl, but she rarely loses her sense of happiness and joy. Molly’s younger twin siblings, Hattie and Huck were born April 15, 2021. Hattie was born with congenital heart disease and was transported to Dayton Children’s hospital upon birth. She was transferred to Nationwide Children’s Hospital in Columbus where she would undergo heart surgery. She seemingly had a successful surgery until roughly two hours after the procedure and her heart stopped. CPR was performed for nearly one hour until emergency surgery was performed to put her on an ECMO machine to operate her heart for her. Hattie has been able to be taken off the ECMO machine, but unfortunately her brain MRI showed significant brain damage due to the trauma suffered. Hattie’s other vital organs are showing progress as she continues to recover at Nationwide Children’s Hospital in Columbus. Hattie’s twin brother, Huck was also born with pulmonary hypertension, and after 13 days in Dayton Children’s and Nationwide Children’s Hospital, the complications have been resolved. Let us keep the Kramer family in our daily prayers. Your generous tip will help cover medical bills, travel expenses, and their children’s special needs.
June 2021
